!!! We continue to experience technical difficulties with the guest book. While we work on fixing it, entries will most likely never make it to us. Sometimes it works, then it stops working, then it mysteriously starts working again. It is a function of Tripod and we are looking at other options for guest books. The main issue is spam with inappropriate links for children. We need to be able to view the entries before posting them to the site. If anyone has any suggestions, please email us. Thank you for your understanding.!!!
We'd like to know what you think about our web site. Please leave your comments along with your first name and state of residence in this public guest book so we can share your thoughts with other visitors.
In order to protect children visiting this website, comments will be reviewed before being posted on this site. Certain comments and links to outside URLs will not be posted.
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Date: 02 Jun 2006
Time: 01:19:40
Comments:
Thank you for all the resources and information. I am certainly better informed
now, as I too had only gotten my information about Tourrette's from movies and
other skewed media.
You are very welcome. Thank you for becoming more educated
about Tourette's.
-Christimo3
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Date: 03 Jun 2006
Time: 12:53:57
Comments:
Way to go girlie! I am so proud of you, and so proud to call you my friend.
Right back at you!
-Christimo3
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Date: 20 Jun 2006
Time: 20:01:46
Comments:
From one "just a mom" to another, congratulations on a job well done. I watched
as you morphed from the struggle of the early days of your son's diagnosis, into
a confident, informed and supportive mother to another awesome kid who happens to
have tics. I applaud you for turning your story and your strength into a
resource for others to come. Thanks for writing something that has been sorely
missing on the internet for years.
-TSNowWhat
Thank you for your kind words. Your dedication to
educating others about TS is truly a gift to us all.
Your compassion and message board gave me strength and much needed answers when
I was most in need.
Thank you!!!
-Christimo3
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Date: 06 Jul 2006
Time: 23:05:45
Comments:
Thank you for putting this website together. I plan to read through the kids
section with my daughter tomorrow. I believe that this site will both help me
and her in dealing with her tics.
SRR
Your daughter is lucky to have a parent that is so
proactive. I hope that this site is able to help.
-Christimo3
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Date: 13 Jul 2006
Time: 02:31:36
Comments:
Nice. Thanks for all the hard work. Maybe my guy will like the activities I
will show it to him soon.
amthrof2
I hope that your son will like the website and maybe even
learn something about his TS.
-Christimo3
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Date: 10 Aug 2006
Time: 21:49:13
Comments:
I want to thank you for all of the hard work that you put into this website. I
sat down with my 8 year old son the other day and read everything to him, and
this really helped him a lot, and it made him open up to me. I am going to be
bookmarking this, and sharing this with his teachers as well. WELL DONE, and a
great place for kids with Tourette's, and their parents to get some information.
Thanks so much!
Hillary from Iowa
Hillary,
Thank you for your kind words. It is for the reasons you stated that my
son and I designed this website.
-Christimo3
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Date: 28 Sep 2006
Time: 21:35:14
Comments:
I just found out today that my 10 year old son has Tourette's and OCD. I new
this
on my own for some time now. I learned about it on Oprah. Your story sounds just
like mine. My name is Cindy. I live in Missouri. God Bless
Cindy,
Thank you for taking the time to sign the guest book. It isn't unusual for
a parent to know long before they
get an official diagnosis. I hope that things go well for you and your
son.
-Christimo3
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Date: 03 Nov 2006
Time: 18:32:55
Comments:
i have Tourette's syndrome and i find it very difficult to cope with and i am 15
can u help me
Wow, that's a tough one. I am so sorry that you are
having a hard time coping with your TS. Did you
know that there are thousands and thousands of people with TS who lead
successful lives? Fifteen is a
hard age for any young adult but can be even harder for someone who is different
from their peers. I don't
know a lot about you-like how severe your tics are or exactly what you are
having trouble coping with (being
different, feeling out of control, reactions of friends and family). I
would really urge you to seek a support
group for kids with TS (www.tsa-usa.org) or get help from a trusted adult.
I know it can be hard to ask for
help but there are a lot of resources out there and people who really care .
You are not alone and TS does not
have to define who you are.
-Christimo3
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Date: 29 Nov 2006
Time: 10:50:16
Comments:
Wonderful pages! Keep up the great work.
Thanks!
-Christimo3
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Date: 03 Dec 2006
Time: 05:51:57
Comments:
Very cool design! Useful information. Go on!
Thank You!
-Christimo3
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Date: 03 Dec 2006
Time: 10:56:35
Comments:
Excellent site, added to favorites!!
I'm glad you liked it enough to add it to your favorites!
-Christimo3
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Date: 07 Dec 2006
Time: 14:57:03
Comments:
There is concern that my son has Tourette's. Thank you for this web site. My
biggest worry was how to talk to my son about it, who is 4, but I feel like I
have gotten some great guidance from the 5-9 yrs old section.
I'm glad you found it useful. My next project with the website is a page on how to "start" the discussion about Tourette's with your child. Some experts would say not to bring it up if they haven't noticed it or if you are sure no one has said anything to them about it. My concern is that once someone says something about it, the damage is done. I would rather my child be prepared with an answer and be confident with himself. I would however caution about putting too much stress on it. If it was me, I would approach it like you would if you were going to tell your child he needs glasses- this is why you make those movements/sounds-you can't help it- it is just part of who you are. Be available to answer questions if he has any. One big mistake I made when we first started suspecting TS is becoming the "tic police". I watched everything and wondered if every movement was a tic. I wish now I could have relaxed a little bit more in the beginning. I'm sure he could sense my anxiety over it. Anyway, please know that TS is not the end of the world and there are wonderful people who can help you along your journey. Take care.
-Christimo3
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Date: 28 Dec 2006
Time: 19:05:45
Remote User: -
Comments:
WOW great web sight, my child has just been diagnosed with add and Tourette's.
Finally a sight not only that my 8yr old can understand but Mom can to. Thanks
for making this page!!!!
Susan
Lexington, TN
Susan,
Thanks for taking the time to write. I am glad that you found the sight
helpful. Messages from people, like you, make all the time spent on the
website worth every second!
-Christimo3
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Date: 21 Jan 2007
Time: 18:09:57
Comments:
Thank you for the great information. It has really open my eyes and helped me
see through a personal level what TS is and how with a lot of love and care our
child will be able to live a normal life. I hope one day I will be able to help
someone else like you helped me today. Bless you all. Sandi
Sandi,
Thanks for your kind words. I am so glad that the site was able to help.
-Christimo3
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Date: 24 Jan 2007
Time: 17:14:47
Comments:
Thank you for sharing your experiences with your children; my son was diagnosed
with tics when he was not quite 4 years old (kind of young as I was told). I
just took him back today (he is now 5) and unfortunately the neurologist said
that it is now a mild form of TS. However, we are trying to learn more of this
condition and what we can do for our son. He is a bright, active, attentive and
an old sensitive soul like your son and so far it doesn't look like we need any
sort of medication god willing. Anyway, your website is a great resource for
someone who is still trying to understand and learn.
Thank you again!
You are so welcome. Take care and know that your son
can lead a successful life regardless of TS. Good luck to you all!
-Christimo3
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