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Resources that we have found helpful

Note: These are publications that our family and friends have found to be useful.  They may or may not be useful for you.  We will not accept requests to have books, movies, websites or other publications listed here.

 

 

Books


 

 

Freeing Your Child from Obsessive-Compulsive Disorder : A Powerful, Practical Program for Parents of Children and Adolescents -Tamar Chansky 

This is a must read for any parent of a child with OCD as well as mild to moderate Obsessive Compulsive Behaviors.  Considered by many to be the handbook for dealing with and obsessive compulsive child.

 

Freeing Your Child from Anxiety : Powerful, Practical Solutions to Overcome Your Child's Fears, Worries, and Phobias - Tamar Chansky

Another must read book by T. Chansky that is just as good and the one above.  It is full of practical advice on dealing with a anxious child. 

 

The Optimistic Child -by Martin E. P. Seligman, Karen Reivich, Lisa Jaycox, Jane Gillham

A good read with steps and advice that will help turn a negative thinking child into a optimist.
 

 

Front of the Class: How Tourette Syndrome Made Me the Teacher I Never Had by Brad Cohen

This is an inspiring life story of Brad Cohen who grew up with TS.  Beautifully written, the book tells about Brad's journey from an often misunderstood child to a nationally recognized teacher of the year. 

 

My Friend Ben by Jeanne Westphalen

This is a book written by a mother of a child with TS.  It is written to help explain TS to kids with an additional information section with resources for parents and teachers.  Clicking on preview on the website will make the whole book viewable in Adobe Acrobat free of charge (the first page is blank so be sure to scroll down).
 

 

Videos
 

 

HBO Documentary - I Have Tourette's but Tourette's Doesn't Have Me - This video is a documentary about children living with TS.  The children in the video are truly inspring.  Most of them do have more severe tics, so it may not scary if you are new to the TS world or a child who has minor to moderate tics.

 

Websites

 

Tourette's Syndrome Now What- This website saved our sanity.  The site provides current information about TS research and its implication.  The message boards are filled with knowledgeable supportive people.  This is the first place you should go if you suspect TS or after a TS diagnosis.

Tourette Syndrome "Plus"-This site is a good place to go if your child has been diagnosed with TS and a co-morbid condition.  There is great information about dealing with schools and education advocacy in general.

 


 

 

Disclaimer- I am "just a mom".  Every effort was made to insure this information was as accurate as possible.  However, no information found on any website should be substituted for the care of a licensed competent professional.

 

A WORD ABOUT SPELLING
The official name of the condition, according to the DSM-IV-TR, is Tourette's disorder.
Tourette's is also referred to as TS, Tourette Syndrome, Tourette's syndrome, GTS, and Gilles de la Tourette's Syndrome.
You may also see it referred to as the Tourette Syndrome Spectrum Disorder,
but many proponents of this terminology include conditions in this alleged spectrum
which have not been shown to be part of or genetically linked to Tourette's syndrome.
Common misspellings are tourettes syndrome, tourretts, tourrettes, touretts, terrets, terets, turettes, and turrets syndrom.
Tourette's disease is another common misnomer (it's not a disease).
Another common misspelling is ticks: ticks are nasty beasts that bite dogs and people. People with Tourette's disorder have tics.

 

Thank you to TSNW for permission to use the copywrited wording above and for her countless hours of dedication to Tourette's education. 
Thank you to Haejinn for permission to print her story on how to tell kids about TS (found on the FAQ page).
Thank you to Haejinn, SLeaska, HBool, Glen625,Sabina0815, MaterialDiva, BlueChin and KBurra for their support and help getting this website up and running.  It was truly a collaborative effort.
Thank you  to Teri and Leah for their input and support.  Not only have you helped with this website but you have also for supported us through this journey.  Words cannot thank you enough!
A huge THANK YOU to our son  for not only helping with this site but for teaching me more about life,  humility, and humanity than anyone else I know.

 

Copyright 2006.  All right reserved.
No part of this publication may be copied, re-printed, or used in any form without my prior written consent.
By Cristimo3: Growing Up With Tourette's Syndrome- Information for Kids